Restless legs

I’m sleep deprived again. I get into bed and my legs twitch and itch, feel sore and uncomfortable. After tossing and turning for a couple of hours came downstairs and slept in my armchair. It feels like having sheet and duvet resting on my legs makes it worse, but as it is cold in my bedroom I have to cover my legs up….

This seems to be happening more regularly and I decided to see what I could find out. I have Parkinsons disease and wondered if it was anything to do with it?

I’ve heard of restless legs syndrome so Googled it. Here’s the answer:

Restless Legs Syndrome (RLS), also known as Willis-Ekbom disease, is a neurological disorder causing an overwhelming, uncomfortable urge to move your legs, often with crawling, itching, or aching sensations, especially when resting in the evening or at night, with movement temporarily relieving the feelings. It’s a common, often unrecognised condition linked to dopamine issues in the brain, low iron, or other conditions, leading to sleep disturbances and daytime tiredness, but it is treatable through lifestyle changes or medication.

Reading that makes sense to me. I think I’ve realised this is the cause.

Early dawn

Last night was another sleepless night. I tried a milky hot cocoa then quietly listening to a classical music radio station. I’d stayed downstairs because I have a chesty cough and it’s better to sleep sitting or pillowed up. Finally at just after 7am I gave up and went to bed. I took this photo at the top of the stairs as the faint light blush from the sunrise started to colour the sky. The view is blocked by various trees including a large straggly goat willow. I managed to get comfortable and slept. Then unfortunately someone rang me at 9.15am! After that I’ve been ringing other people so I suppose I’d better stay up.

Last night..

The cats slept but I didn’t.

Little snores kept me awake.

I don’t like the dark

Or the cold

Being on my own.

One cat gets under the covers

Claws out, poddling me

It’s sweet but

Then she gets too hot

Leaping out and away.

I tried reading

But I ached,

My mind raced

Too tired to sleep now.

Third night this week….

Oh for a good night’s sleep

Distractions don’t work, I’m dreading the night, time for my mind to run riot. Put the radio on low? I just have to listen. I can’t stop myself. It’s too dark so I put the light on to feel safer. The cats jump on the bed but then want attention. My head spins. My circadian rythms are all over the place. A cup of cocoa doesnt work. Yawning now. 8.30am another sleepless night.

Midnight snack?

I can’t sleep, my bad leg is achy and itchy, I’m hungry because we had tea hours ago. I want comfort food. Sweet but not full of sugar. I found a croissant in the fridge and cut it in half lengthways. I’ve peeled a banana and I’m having a banana croissant. For a warm drink I’ve got a mug of milky decaffeinated tea. Not sure if any of this will make me feel better. I’m also surrounded by three cats intermittently mooching round me, coming up for attention, purring and poddling. 2.38am, aching, possible indigestion and cats. What a combination!

Dawn chorus 5am

Imagined view of our garden with bird singing. Too dark to really see.

It’s just after 5am now. I got up because my toes hurt (gout?) on the other foot to the one I had broken my toenail on. Long boring story…

Anyway it’d still dark so I’m sitting here by the light of a standard lamp and trying to sleep with my foot uncovered so there’s no pressure on it.

But through the window I can hear the lilting song of what I think is either a Robin or a Blackbird. I haven’t heard them in the morning during the winter, so I guess spring might just be on the way. It’s lovely to hear them, possibly marking out their territory in the tangled trees and bushes we call our garden. Mind you they have to be aware of the local cats. Mine are all inside snuggled up, but I hope they are singing high up in the branches. X

Toast at 4am

It’s another one of those nights. I lie down to sleep but my thoughts churn. I’m too hot, then too cold. I tried reading but hubby wants the light out, then he starts to snore. I came downstairs to get a drink, decaffeinated coffee, what a thrill?! I decided to treat myself to a slice of toast with hummus. Not very exciting. I know that at this rate it will be afternoon before I get up. One of the cats is on the armchair next to me, paw over his nose, keeping the light from the standard lamp out of his eyes. Oh to be a cat, curling up wherever you can. Warmed in a fur coat that is totally ethical. The house creaks at night, it’s old and not very well made. I think of my sister late at night. My chest does ache, but it might just be the cold I’ve had for the last few days. I guess I’ve got to learn to live with the loss. I’m still mourning her. Maybe tomorrow night I’ll get a better night’s sleep.

A cold?

Phew! Negative test. Just got a sore throat and runny nose. Plus hot and achey. Probably a head cold. I will do another test tomorrow just to be on the safe side. If I have caught it then me and my hubby will have to stay in till its gone. In that case I might have to order food in on line? I can’t expect to get someone to go shopping for me. It is, I guess, a first world problem.

Sleepless

Sleepless, no dreams to tie my mind down. Only the dull drumming of my pulse in my ear. The ache of a big toe constricted by bed clothes. The air on my face shushing as my CPAP machine quietly stops my palette from collapsing. Aching shoulders gripped with tension. The tiredness continues, but I am awake. I try different ploys, reading by low lamplight until the book thuds to the floor, which generally wakes me up again. Multiple thoughts whirl around my head, they are like several butterflies or fireflies all swirling around. Try and pin one under a finger and another flits off towards the ceiling or the floor. Gouty aches twist my limbs. Was I ever so uncomfortable? I know I need to get up and use the bathroom, stubbornness and the hope of sleeping hold me in place for a few minutes, then I swing my legs out of bed and grapple with my balance before venturing down creaky stairs into the cold. Once again, like on many other nights, I make myself a warm drink to calm the shivers and try and relax. I may stay downstairs for half an hour, waiting for my hubby, who I disturbed, to get back to sleep. Often on returning to bed I put the radio on low on a speech channel, I don’t like music playing, but often I get drawn into a programme, the sound so soft it becomes hard to detect what is being said and my brain tries to decipher the words. At some stage I will either drift into sleep or get up and turn off the radio. Often the dawn is breaking before I finally get any rest. Sometimes I remember to try relaxation techniques. Or repeating the word ‘the’ over and over in my head. Sometimes I even stay downstairs and try and sleep in my armchair. Tonight might be one of those…..