Ping pong

I took this photo after playing table tennis today. I’d popped this ping pong ball into my pocket and took it home by mistake. I haven’t been to the group for a few months after I was ill. I’m not sure if I’m fully recovered but decided to give it a go. I managed to play a bit but had to take breaks. Since I got home I’ve been really tired and I think I’m coming down with something. Ugh.

Long day, almost forgot to blog…

This morning the neighbour was hammering again but I ignored him, I had an appointment with the optician. I decided to walk the few hundred yards as want to try and get a bit fitter. As it was it took me about 25 minutes to walk 800 yards…. I’m just getting more unsteady and it’s a vicious circle of pain and shaking with the Parkinsons.

To the opticians, as I thought my cataracts are getting worse, he agreed, but that at least means I might be able to get one eye operated on.

I picked up a few groceries on the way home, enough for one bag. I needed some vegetables and porridge. Then home slowly in the sunshine.

When I got in I decided to pay for my garden waste collection. I tried ringing the council but got automatic voice messages explaining that I would have to pay online and no one would personally take my call. After feeling frustrated I decided to text my local councillor. That’s hit and miss as I have to spell check everything because I don’t always hit the right keys. This was asking if I could ring another number and get a real person!

Finally I tried the council number again. I chose a different option and a man answered. He put me through to the waste department and I got a real person, a woman to speak to. She asked if I could get a relative to pay, but one is dead, another lives 80 or 90 miles away and the other one is abroad. I could go down to the library she said. I explained I had already been to town and was tired out (my car was blocked in or perhaps I could have driven). Eventually it got through to her that I wasn’t going to be able to do it so after speaking to a manager she took the payment over the phone. Looking back I could have been nicer but I was tired and flustered. I she told me to use my key pad on my phone to type in some numbers and I didn’t realise she meant the phone keypad, I was looking for a qwerty keyboard! I did apologise for taking up her time.

So then I fell asleep and dozed for a while. It’s taken me a while to get this down on my phone keypad. I don’t normally have the energy to do so much in one day, my feet and ankles ache and I’m feeling a bit grumpy!

Sketchbook

I need to draw again, but with my Parkinsons it’s so hit and miss. I need to be still enough to stop the tremors transfering  onto the pages. Either my drawing hand shakes or the hand holding the Sketchbook shakes, it’s like being a human seismograph! If I had the gumption I would use it to my artistic advantage. I’ve never wanted so much to colour outside the lines but in a coherent, not random way. My life needs to settle down so my mind can too.

Missed them!

Bright auroras all over the UK. But they happened earlier and I seem to have missed them. When I did go out round the back of the house the sky looked normal. So I looked north at the front of my house. But I could only see a green glow through the factory lights. My Parkinsons camera shake was as bad as ever and I was shivering. So I totally apologise for this awful picture!

It happened again!

Auroras again. Last night at 2am. Looking West. This is a 60 second exposure taken on my phone camera which stacks images when my phone is set on night exposure. Midlands in England. How can I be so lucky? Never seen them until this year.

How did I know it was happening? I saw the weather forecast again so I decided to look out at midnight, but that photo was mainly blue with grey white splodges. So it was overcast. Then when I looked again just before bed the sky was darker and something seemed to be happening so I took a few photos ( I can’t explain how dim it was and I basically just risked taking a picture.) the main problem is trying to keep the camera still by leaning against something as my Parkinsons is getting more shaky

Shattered

Two years ago I was down in Falmouth.

Now I’m tired all the time, I try and do things and end up shattered.

I get fed up of having to take tablets everyday. Sometimes they have to be tweaked to adjust how my body copes with things. Currently I’ve stopped one type of tablet and have started on something new. All this takes time to get used to.

Life consists of doing a few things to try and keep contact with friends, but not really being able to cope with day to day tasks. My sister bought me a jar and bottle gripper a few weeks ago. It’s been a godsend because I’ve lost strength in my arms and hands. People of a certain age will have heard of Pansy Potter, the strong man’s daughter. I used to be really strong and, able to pick up heavy weights or open tightly closed jars, what happened to me? I’ve suddenly realised I have got old. I don’t mind looking old, but I wish I was able to get back some of my fitness. I know it’s important to keep moving if you have Parkinsons, but it’s hard when you feel tired. I want to go back in time. I want my life back.

Sorry, moaning over.

Can you act?

I treated myself to an acting workshop for my birthday. It was a bit of a random choice, but I’ve found myself stuttering more since I got Parkinsons disease and I thought it might help my concentration and confidence.

Luckily some of my friends were also there which made me feel less anxious. We started out being given various exercises. First we had to look at someone in a large circle of people and then point at them. The person had to say ‘yes’ which gave the person pointing permission to walk over to them. In the meantime that person had to point to someone new, be acknowledged with a yes and then move on.

It wasn’t complicated, but it was hard to get your head round. It’s hard to just explain it. A few people said yes and started moving themselves instead of waiting for the other person to move. We eventually went on to counting, so it was like a moving conversation with numbers instead of words. Confusing for some, and hard not to make mistakes.

At the half way point we were given short pieces of dialogue. We were then split into groups of two and asked to read through the scripts and pick out concrete facts, not opinions. So you could say those facts could ground the performance, whilst opinions in the scripts could change how you felt about your partners character.

The whole workshop showed how important listening and reacting to another actor is. I don’t know if it helped my confidence but I have to say I enjoyed it. It was run by Claybody Theatre, based at the Dipping House, at Spode Works, Stoke, Stoke-on-Trent.

Scenery

So tired,

A day full of painting ad singing, I was helping with the Molly Leigh project at BArts. I offered to paint a picture for a wall in the witches cottage, I ended up painting a fireplace too. I only did the morning as I wanted to join the choir and to be honest I was so stiff and tired after I’d been painting I almost fell asleep in my chair!

Progress

This is hard work, I don’t shake as much when I’m concentrating but the tremors of Parkinsons make small details difficult. I try and hold my breath and clamp my arm against my body. In fact I’m having to redo sections because I’m not happy with the results, but I will persevere, memory of Molly, work in progress. Acrylic on canvas. Copy of a mural I did at the Leopard Hotel in Burslem, Stoke-on-Trent. Difficult to reproduce the same feeling.